The Diagnosis of Hodgkin’s Lymphoma
In January of 1995 I was 32 years old and had an almost 4 year old son and a new baby boy- just 6 weeks old. I felt a lump on my neck near my right collar bone. It was just the size of a pea. My sister in law, a nurse, said it was probably nothing, but I went ahead and asked my obgyn at my 6 week appointment. He also thought it was nothing but said to see a surgeon if it would make me feel better. I have always been proactive when it came to health so I booked an appointment with a surgeon. The surgeon also thought it was nothing and gave me antiobitics. A week went by. The lump still didn’t go away, so he said he would remove it and biopsy it, 99% chance it was nothing, just an infection. So I went into the little surgery not being worried about it. I had the surgery on a Friday and it took longer than expected. The surgeon told my husband he suspected something. My husband didn’t tell me that because he didn’t want me to worry all weekend. So finally on Tuesday the doctor’s office called me and over the phone said “You have Hodgkin’s Lymphoma but it is one of the best kinds of cancer”. I was a bit freaked out. I immediately called my husband, who was at work and then rushed home. But first he called his sister, the nurse, to talk to me and calm me down.
Then I called my best friend Amy, whose dad is a doctor in Tulsa, to find out who was the best oncologist around. He called back and told her Dr. Alan Keller with Cancer Care Associates. It just so happened that Amy was going to a cocktail party that night and the CEO of Cancer Care was there. Amy talked to him about me. I got an appointment booked to see Dr. Keller. But before I saw Dr. Keller, I saw another oncologist first that my surgeon had recommended. He was from another country, and was really nice but I found him hard to understand. He said for me to be “cautiously optimistic” with my prognosis. The one thing I remember that I didn’t like was that his office was dark and dreary. It is amazing how little things like the doctor’s office atmosphere can affect someone.
I went in to see Dr. Keller and instantly knew I was at the right place. Their atmosphere was cheerful. Dr. Keller was incredible. He also was optimistic with my prognosis and made me feel like the treatment was just something I had to go through to get better. Hodgkin’s is usually very curable today. It wasn’t 40 years ago. In fact, my next door neighbor’s first wife had died from it after their first baby and she was just in her 20’s . Our next door neighbors were 30 years older than us and like our 3rd set of parents. They were very upset when they heard what I had.
Prognosis and treatment of chemotherapy and radiation
Immediately Dr. Keller did a bone marrow biopsy on me to help with the staging. Wow, that was the most painful test in my hip but it lasted just a split second. Luckily, it had not spread to my bones. Then I had to have other scans and tests. I was staged as a 2A. 2 because it had spread from my neck to my chest (I had a mass in my chest). “A” means I had no symptoms. Some people experience fatigue, night sweats, and weight loss. I didn’t have any symptoms but the lump in my neck. Hodgkin’s disease is considered one of the most curable forms of cancer, especially if it is diagnosed and treated early. The cause is not known. Hodgkin’s lymphoma is most common among people ages 15 – 35 and 50 – 70. Infection with the Epstein-Barr virus is thought to contribute to most cases. Another interesting thing I have heard is that many people who have had Hodgkin’s have had Mononucleuosis. I had mono in my 20’s. Unlike other cancers, Hodgkin’s disease is often very curable even in late stages.With the right treatment, more than 90% of people with stage I or II Hodgkin’s lymphoma survive for at least 10 years. If the disease has spread, the treatment is more intense but the percentage of people who survive 5 years is about 90%.
Dr. Keller advised 6 months of chemotherapy (every 2 weeks) followed by 6 weeks of radiation for me. He said if I had both, my chances of survival were 98%. He said most often, if it were to reoccur, it would come back within 2 years (glad that was 16 years ago!). They got started with my treatment very quickly after I was staged. I started treatment the day after my older son’s 4th birthday.
My friend Amy had another friend, Teresa who was diagnosed with stage 4 Hodgkin’s at the same time as me. We met each other and kept each other posted of our treatment. She is now fine today too!
Silver Linings
There was a silver lining to my cancer. My faith was really strengthened and I realized how many blessings I had in my life. Friends and family were making me meals, hiring a cleaning lady, helping in so many ways I almost felt guilty, but then I realized that it was a way they could feel better and contribute to what I was going through. My mother in law was incredible; every 2 weeks when I had chemo the boys and I would spend a night or two at her home and she took care of us. I kept telling myself that God had a plan for my life and I was going through this for a reason.
People were surprised at my positive attitude but I didn’t really see what other kind of attitude to have. My doctor was so positive and just looked at treatment as something I had to go through to get better. Who cared if I lost my hair? It was only temporary. Because my kids were so small I had to focus on them and couldn’t wallow in self pity. I didn’t have time.
One big thing I learned is how important it is to say only positive statements. People would say things to me like they were sad I might not be around or they knew someone who died from Hodgkin’s. That didn’t help me at all! I hated the look on some people’s faces when they found out I had cancer. It worried me. I chose to just listen to my doctor who was optimistic and knew the latest in medicine. I now am very careful to only tell positive and success stories to people that are going through something. You don’t realize how people can internalize little comments and how it can affect them. My husband was my rock-he shielded me from negative people and statements. My cancer strengthened our already strong marriage. We have now been married almost 27 years. He is my best friend. Ok, I digress!
I kept wondering what I was supposed to do with this experience. During my treatment one of my good friends came down with breast cancer. She had commented earlier she didn’t know how I was getting by and then weeks later she had a battle to face. I saw myself becoming an encourager. We started to have fun with it; me with my wig and she with her prosthesis (she too had just had a baby 2 weeks prior to her diagnosis and couldn’t have reconstruction for several months so had to have a prosthesis). Shortly after several other friends came down with cancer and I was there for them and hopefully an example. Happily, everyone is fine today.
The years went by raising little boys and for a while I just wanted to repress my experience and move on. I didn’t want my cancer to define me. I really wanted to forget it. I just wanted to get on with life. Over 10 years later, Happy First was born (more on how we got started later!).
While in the planning stages of Happy First, my dad was diagnosed with Multiple Myeloma. This is also in the Leukemia and Lymphoma family. This was confirmation to me that this was what I should be doing. Happy First gives a percentage of profits to leukemia and lymphoma research. I want to give back. I wouldn’t be here today if it wasn’t for cancer research. We launched Happy First in May of 2007. My dad passed away in September of 2007.
Now you know why I am so “happy to be here” (and that is the name of my latest tee, more on that later!) and why I celebrate each month by saying “happy first!”. I now know that I went through Hodgkin’s Lymphoma to encourage and inspire others. I am grateful I went through it, but hope to never go through that again! It is still scary going for checkups, it brings it all back.
Wow, it feels weird writing all of this down to tell you. I haven’t thought of the details in a long time.
I hope I have helped someone with this story! I would love to see your comments below. If you have an inspiring story, please email me at debbie@happyfirst.com and let me know if you want me to share it.
Have a happy day my friends, and be glad you are here!
Great article Debbie……….you are the epitome of “Dreamer, Doer and Survivor” , and a lot more!!!!!
Love, Kathleen
What an inspiration, Debbie! I’m sure it wasn’t always easy to keep a positive spin, but having met you, I know that’s part of who you are. You are a supporter and a positive influence on so many!
Thanks my dear friends! 🙂
Realy going same
wil b realy great if we wil chat on facebook to know more
kingmasoodi@rediffmail.com
My daughter is 12 years old and just been diagnosed with hodgkin lymphoma. I am very scared and can’t stop crying!!!!
We are here for you, I hope you are reading all of the other inspiring comments. I am going to send you a private email. I hope everyone feels free that they can always email me at debbie@happyfirst.com and I also love that people comment publicly too on this post so everyone gets inspired.
I too was diagnised with Hodgkins Lymphoma at 12 years old. I can’t remember what stage it was but I no it was in my neck, chest and groin and I had symptoms of night sweats, extreme tiredness and weight loss. I am 23 now and gave birth to my beautiful baby daughter in may last year. I am so thankful to God for the strength he gave to me going through my treatment. Just like Debbie says, a positive attitude really helps. There has been such great advancement in treatments for Hodgkins Lymphoma and for a lot of cancers. Pray, hope and trust in God. God bless x
how is she doing now after 4 years?
My friend was just diagnosed with Hodgkin’s Lymphoma. Not sure what stage it is in yet. She will find out Saturday, the very day we are to visit for the weekend.
I will keep positive and tell of your survivor story. What else helped you and what can I do for her that will help her? Any particular gifts you enjoyed or books, etc. Anything would be helpful.
I’m very nervous because I am heart broken. She means everything to me so I need to help her thru this.
Thank you and I am so happy to know of your story.
Glad you are here too!
Vicki
My supporting family and friends helped me so much. Positive books and stories always help! Also I wish I had practiced yoga back then, I think it helps with healing! I did exercise but back then it was more aerobics and weights. But at least activity helped me feel better.
Just read your story and love that you said, “I just didn’t know what other kind of attitude to have.” I think it was your innate happy, positive self that responded to the challenge you faced. I also appreciate that you listed some of the blessings that came from your battle. Some people just can’t think of ANYthing positive at a time like that.
I once saw a bedside prayer card at St. Francis Hospital that thanked God for “the opportunities that only illness can bring.” It was the first time I had ever thought of illness as an opportunity, but you illustrated that point well. And I’m sure that all those who read what you wrote will be inspired to look at their own “negative events” as “opportunities for something good” to come out of it. Bless you for sharing your story!!!
I was just diagnosed with Hodgkin’s Lymphoma last week. This is the 1st “positive” story I’ve seen. Thank you for sharing.
Debbie you are a treasure and a breath of fresh air to everyone that comes along your path. Happy First is going to be a wonderful place for people to gather and get inspired,recharged and pointed in the Positive Direction. Keep up the great work on the blog! I admire you!
Jo, I was overcome with emotion when I got your comment. I have been hoping that my blog would be a way to reach people. I am glad you found me! I would love to talk to you if you need someone to talk to. That helped me so much-my sister connected me with her friend that had been through it just the year before me. I will direct message you my cell phone via twitter so you have it.
Roxanne and Tammy,
You two are such positive, happy, mentoring influences in my life! I am so glad I know you both.
Hi Debbie! Just wanted to say that you’re an inspiration. I was diagnosed with stage 4a hodgkins back in November, and am now 3/4 of the way through a six-month course of chemo. Very happy to report that last week’s PET scan came back clean! Am relieved to know that my chances are good at this point. And am very happy to be here, indeed! 🙂
Hi Jen! Thanks for your comment! I love your inspiring story! So glad you are almost done with chemo and have a clean PET scan! Yay! Let’s stay in touch! 🙂
Hey Debbie I am finally writing another quick comment, hope this one goes through! You are an amazing friend not only to me but to everyone!! God knew what he was doing when he put you in my life. You have been nothing but loving, kind , helpful and inspirational. Just to name a few. And because of you I am now re connected with Amy, which is such a blessing too. Thanks for your blog and your commitment to our community through happy first and to cancer research donations but most of all your friendship! I love you very much my dear friend! Jennifer
I’m about to celebrate 2.5 years of being Hodgkin’s Lymphoma-free! I was diagnosed the week after I graduated from college and went through six months of ABVD chemo (adriamycin, bleomycin, vinblastin, and dacarbazine — ugh, makes me nauseous just typing them all out!). Definitely happy to be here, too. 🙂
Congrats Paige! So happy you commented and glad you are doing well! wow, I had forgotten what ABVD stood for! Just wanted to repress that part! Actually, treatment wasn’t so bad, I was just so happy they knew how to treat it! So I kept looking at the goal of being cured. Please stay in touch!
Hi Debbie,
My brother who is 30 years old, has been diagnosed with Hodgkin’s Lymphoma recently. The doctor has told us that it is curable. However, what I am so confused about is that what do doctors mean when they say curable? Do they mean that cancer will be completely gone, finished and person can live till old age? or do they mean that the it is curable for time being and the person will only live for another 10 years or so?
Gina, I am so sorry, I just now saw your message, don’t know why it didn’t pop up in my email. Yes, Hodgkin’s can be completely curable. Be completely gone-live til old age. They told me that 16 years ago. They know how to treat it. They told me I got the best kind of cancer (which I wasn’t asking for any! but at least I got the good one, ha ha). I am not saying that everyone is now cured, there can be complications. But for most people, it is curable. Please keep me posted on your brother, I would love to keep up with you. Feel free to email me at debbie@happyfirst.com. I love encouraging people through this and getting to know people.
Hi Debbie,
Thank you so much for replying back. My brother had also been worried about this. This gives both of us and my family so much hope. You story is truly an inspiration. I will definitely keep you posted about my brother.
Thanks
Gina
Thanks Gina! I’m glad you will keep me posted. Is he doing chemo and/or radiation? Tell him to just listen to positive people!
Hi Debbie,
He is actually doing chemo right now, Beocopp.Then he is going to be on ABVD cycle. The doctors said that he may not need radiation. So lets see how it goes. Thanks again. I will tell him that!
Gina
Just checking in with you Gina, how are your and your brother doing?
Hi Debbie , I just wanted to say I too am a hodgkins lymphoma survivor ! I was diagnosed in march 08. I was 37 years old at the time .i am now almost 42 .going for my ct pet scan in January .lol I don’t care how many times I go for that scan it still makes me panic that they will see something.but my dr is wonderful he’s always been very optimistic.i also did the abvd treatment every 2 weeks for 4 months and then 18 radiation treatments.i just wanted to tell my storyand hopefully help someone out there just going through this .its very scary but just remember this is a very “curable” cancer to have lol not that I want it back! And with lots of prayer and a great support group you will be ok.
see my reply below, just wanted to make sure you got it!
Hi Stacey-thank you so much for your comment! I think it is so important for us to encourage one another! I think it so so helps others to hear our positive stories. I just clung on to the success stories when I was going through treatment. My doctor was like yours too, was very optimistic and told me I got the “good” cancer (lol)!
Hi there. I am 35 and have a 6 mnth old and a 4 year old and just got told I have Hodgkins Lymphoma! A bit freaked out at all the people on the net that have passed on due to it, but I read your story everyday to remind myself there are survivors! Thank you! I got a port put in yesterday and chemo will start next week! Regards Kyla
Dear Kyla please try not to worry I know that’s easier said than done! You will get through this! If you need someone to talk to I’m here I know what it feels like I too had hodgkins lymphoma I was 37 at the time and my daughter was 12 .i was really terrified! I hope you have a really good cancer doctor one who is encouraging and optimistic that is really important in your recovery along with prayer and family support . Hang in there I will pray for you.take care,Stacey S.
Thanks for your help Stacey!
So good to hear from you Kyla! Wow, your kids are about the same ages mine were when I was diagnosed. The good thing about that is I focused more on them than what I was going through, it really helped me. Please keep me posted on your progress. My email is debbie@happyfirst.com if you ever want to email me. Don’t read the negative stories on the net, just feed yourself with positive! There are many many success stories with Hodgkin’s Lymphoma.
Some people give gifts. Some people are the gift. You are a gift! S
I’m just the messenger, thanks Stacy!
Hi Debbie,I was just wondering have you been taking vitamin d3 since you had cancer? When I was first diagnosed my doctor told me to start vitamin d3 2000 iu everyday .i started researching it and didn’t realize how important vitamin d3 is it helps to prevent a lot of cancers and is good for bones and stuff. So just wanted to put that out there for anyone who doesn’t know it( btw my dr said to take it for the rest of my life) have a great day!
Stacey, no my doctor never told me that! and I wish he had. I have osteoporosis now, but not bad enough that I have to take the strong stuff. Just supposed to take calcium and Vitamin D. But I don’t know about D3, I think I am just taking regular Vitamin D, like 3000-4000 iu a day (that is what my osteoporosis doctor said). I will check into it, thanks for sharing! You are awesome!
Debbie,thanks and your awesome too ! There’s a website (vitamin d the cancer cure ) it has lots of info I’m not real sure what the difference is between d3 and regular vitamin d but what ever it is it must be important enough to get the d3.ive read that most people that have cancer are vitamin d3 deficient and if they had optimal levels before the cancer they probably wouldn’t have gotten it! It really upsets me that people aren’t aware of this! Had I known I would have been taking them a long time ago.and I thought something was interesting in your personnel story,I too had mono when I was younger about 15 or 16 .anything new I hear I’ll pass it your way ! Thanks so much,Stacey
Stacey-is the site http://www.canceractive.com ? I just read that one. So so interesting. I am going to pass this along. I should blog about it! Oh, it is D3 I am taking. My doctor (who I just love!) never told me anything about Vitamin D. But I went through treatment 17 years ago. I see him once a year; I need to ask him about it!
Hey Debbie ,yes that is the right website.im so glad you read it! I think that would be great to blog about it !
Debbie,
I am about 1/2 way throught my abvd treatment for hodgkins and am having one of those days, thanks for your inspiration and guidance.
John
I am so happy to be here for you. yay! You are halfway done!
Hi debbie..
I m also diagnoised with hodgkins..
Nd i m facing it strongly nd positively with my family’s support nd blessing..
Bt wht depresses me is hair fall..!
I m 23 year old nd just got engaged..
My fiancee is very supporting but my hairfall,
Upsets me..
Thank you for your inspiring story. I have stage IIA Hodgkin’s and have my first chemo (ABVD) on Friday. Port is being installed tomorrow. I’m 30 years old and was just trying to start a family with my wife of almost 3 years. I’m a wreck emotionally when I’m alone. I know that most people are cured and I’m so thankful for that! I’m really nervous to start chemo, but also so ready. The way I’m looking at it is I can’t get better until they pump me full of that good ABVD so let’s get it started and get cured! It was very encouraging to hear you say that treatment wasn’t that bad. I’ve been so nervous about it as if I would turn into a zombie after they give it to me! lol God Bless you and thank you for your story. It has given me a bit of courage going into chemo.
Blake
Hi John, so glad you wrote in. I will be thinking about you on Friday. The treatment really wasn’t bad-I just had to take it easy for 2 days after treatment, I slept a lot! Please keep me posted on your progress. Surround yourself with positive people! I hope other people’s replies on this blog will help you too. 🙂 It sure helps to talk to people that have gone through the same thing. I am always here and my email is debbie@happyfirst.com.
OH my gosh, Blake I don’t know where the name John came from! How was your first treatment?
Thank you for the encouraging story. I have just begun my battle. I was diagnosed on 4/9/12, and have my first PET scan on Monday, 4/23. I have to admit, I’m not looking forward to my bone marrow test on the 26th, but I’m looking forward to getting this done so that I can be well again. I know this will be a hard road, but I am confident that God will give me complete healing in the end. 🙂
Thanks for your comment, I just found your blog and will be following it. It is awesome. Please keep me posted. 🙂
Thank you Debbie you have blesed me may God always bless you.
Thank you for your very kind comment, it means so much to me. I feel like I went through Hodgkin’s for a reason- I want to reach out and encourage others. If you ever need to talk to someone, I am here. Feel free to email me- debbie@happyfirst.com.
Hi Debbie, I am so glad that you posted this. I’ve read so many negative things. Usually because the people who have had negative experiences are the ones that are online posting about them! The same usually does not go for people with positive ones. I too was diagnosed with Hodgkins stage 2A, just this last December. I had it in my neck, collar bone and arm pit areas on my right side. I did 4 cycles (8 treatments) of ABVD and 15 radiation treatments to those areas. The chemo was tough. The bleomycin messed with my lungs and they left it out of the last 3 treatments. I’m hoping that they get better over time. I can relate with the oncologist situation. I had been diagnosed 2 days before Christmas which was on a Friday, so all of the Oncologists were taking off the week between Christmas and New Years. I had to wait and took the first doctor that had an open appt for a consult. My mother went with me and didn’t really care for her but I thought she was “ok” because I was so traumatized to begin with. As my treatment went on I really started to dislike her, but I LOVED my nurses who are the ones that I spent the most time with during treatments, so I stayed. As soon as I was done I found a new Oncologist that is super positive and actually sits down and listened to me! The old one was so negative, even when my PET scan came back clean after my chemo, she walked thru the door and said “yeah, your scan is clean, but your lungs look terrible” all the time having a disturbed look on her face. I went to another Oncologist for a second opinion before starting radiation and he said he would only do 6 cycles of chemo on me and no radiation and that is what the new medical guidelines for Hodgins is. I went ahead and did the radiation because I had such a tough time with the chemo and it had affected my lungs so badly, my function was cut in 1/2. When I went back to see if he would see me just for follow ups, he said that I did the radiation against his “opinion” and it was senseless and done for no reason, because I still need 2 more cycles of chemo. Well, the new Onc that I found said that was “ludicrous”. He too said that he probably would have tried to push me through 6 cycles of chemo and no radiation but that my treatment was certainly not “wrong”, he just tries to avoid radiation if he can. So please please please, anyone reading this. Take a breath and step back and go to a couple of doctors before starting treatment and make sure that you are comfortable with your Onc. It makes a world of difference. I only wish I had found my current Onc first but then again, I wouldn’t realize how great he is.
Thanks Nicole! I love that you shared your story, I think everyone can really help each other so much. It just amazes me how some doctors (and friends even!) don’t realize that we need to be surrounded by positive! I guess some doctors see it everyday and don’t think sometimes. I would hang on my oncologist’s every word. (And luckily he was upbeat!) I love your happy attitude, let’s stay in touch! I love this group of friends here. I have met the most incredible people through my experience. All these silver linings…
For sure lets stay in touch! I would happily respond to anyone that has just been diagnosed and has questions. I’m still dealing with some after effects of my treatment but I just know that everything will be ok in the end. I honestly dont think that I ever looked at this as a death sentence at all. Dont get me wrong, I FREAKED OUT when I received my diagnosis. But I have to say that I honestly looked at it like a “major inconvenience” in my life, that just had to be dealt with. My radiation Oncologist was great and when I told him about my medical Onc being so negative he said that she wasn’t as “experienced” and sometimes the younger less experienced Onc’s are so cynical. He said that they don’t see as many patients like us with a good prognosis. (I also went on a road trip to Disneyland the weekend after my first Chemo treatment and the doctor looked appalled when I told her that I was going to go. She said “that’s right after your first treatment”. Im so glad that I went, because in a few more weeks I felt pretty horrible and wasnt up to do anything)
Love your attitude! You will lift up lots of people. 🙂 Love hearing from you!
hi im craig iv just been told iv got hodgkins lymphoma im very worried at the fact im only 35 and have a misses and 2 very young children iv read your story and it has shed some light in to my mind and i pray that i will be good in a few months time
Hi Craig, So glad you found this post, and I hope you find my story and the comments of others encouraging. I’m thinking of you, please keep us posted of your progress.
I am 34 years old 8 year cancer survivor of Hodgkins Lymphoma. to all who have been recently diagnosed…keep your head up. It sounds corny but comedies got me through…laughter is truly the best medicine. I was pretty young when I was diagnosed…it was hard but you will make it through. I had a stem cell transplant & am happy to report still here. So please fight hard people!! Great blog Debbie! 🙂
Thanks for commenting! Love stories like yours. I feel like there are way more positive stories like yours with Hodgkin’s, but people don’t always take the time to share. Thanks for sharing and helping others!
hi Debbie
i had Hodgkin too in July 2009 , i have a question, since 1995 did it relapse ? Because its like a nightmare to me to go through that again. i have the same fear as you said every check up.
thank you for you…
Hi Jaff,
I am sorry for just replying, I usually get an email telling me I had a comment! No, I have not had a relapse since 1995. Yay. My doctor told me usually a relapse would occur within 2 years so I was glad to get past that! Hodgkin’s can be very curable, so focus on that. I still do go once a year to see my doctor just for that reassurance.
Hello, I just stumbled upon your inspirational story, and was brought to tears. I too was diagnosed with Hodgkins in July of 2009. At that time, I had a teenager and a toddler, and my oncologist strongly suggested that I consult with a fertility specialist if I wanted to have more children after treatment. My husband and I decided we were content with our two sons and moved forward with my treatment without seeing a fertility specialist. I had chemotherapy, followed by a PET scan which came back cancer free. I had radiation therapy as an extra precaution, and at the end of treatment discovered I was pregnant! I had a beautiful and healthy baby boy, I was on top of the world! After my son was born, my doctors discovered the cancer had returned. I was hospitalized for high dose chemotherapy and stem cell transplant. I AM NOW IN REMISSION! I cherish every day with my husband and my boys. Thank You for your story.
Thanks so much for sharing your story and I am so happy you are in remission! I love hearing from each and every one of you and always think of you all. I hope all these comments are encouragement and support for one another.
Great story–I’m 13 years cancer free! I too had Stage 2A Hodkins–discovered a little pea on the left side by my clavicle. Great story–pretty much mirrors mine except I didn’t have children at the time. I am happy to say that after 6 months of ABVD and a month of radiation (and many years later) I am still fertile and counting the hours until my wife and I welcome our third little miracle to this world. Life is truly good–and I will never take a single second for granted.
Thanks so much for sharing, Shawn-so happy for you and your family! Life is good :).
Hello Debbie,
I am Nataraj, 27 Years old and I am a Hodskin Lymphoma stage IV survivor. I went for 8 cycles of ABVD chemo and now i am normal. but i am having auxiliary adenopathy. Is there any chances of this Hodgskin Lymphoma to be repeated. If you came across any such information (symptoms of repeating cancer and possible ways to detect and cure ) please let me know
Hi Nataraj, how are you doing? I’m not an expert, just a survivor and and an encourager. I hope you have a doctor that you love that can answer your questions. Be careful what you read online, focus on the positive, I think sometimes the rare, negative stories are what people find online instead of the overwhelming amount of successes.
I’m newly diagnosed, have a big support group but no one that’s actually been through what I’m about to go through and I feel like I’m not handling it well enough an just need others to talk to.
Hi Jennifer, how are you doing? We are here for you! Please keep us posted. 🙂
I was diagnosed with Hodgkin’s lymphoma nodular sclerosis type, so far stage 2a I’m 29 and a single mother of a 7 year old little girl. I’m depressed and crying a lot, I don’t know how to find this strength everyone talks about. I’m scared of chemo and my weight, I’m only 95lbs but since I found out I’ve had a knot in my stomach and have a hard time eating already, down to 89lbs I’m just having a hard time accepting that I have cancer and am not handling it well at all an I’m disappointed in myself.
Hi Jennifer! it soundm like we got diagnosed around the same time.. I found out in mid November that I have Hodgkins stage 2b. there been many ups and down since finding out… but it’s blogs like these that give me hope. we just need to focus on the fortunate things. seems like if you’re going to get cancer this is the 1 to
get ironically. I know that doesn’t necessarily hope to hear it.. but it’s just something we can remind ourselves of. hang in there Jennifer.. we can do it!!
sorry for all the typos I’m using my phone
Thanks for writing in, AJW! It sounds like you are a positive person! How is your treatment going?
Hi Debbie I haven’t been on in a while but I’m happy to report that I am at my 5 year cancer free mark. I hope you and everyone on here are doing great as well ! Take care
Stacey-Congrats!!! So happy to hear from you, thanks for sharing! 🙂
I am in the process of seeing if I have lymphoma right now. Dr’s are concerned with several different things. Not really sure how to navigate the possibilities that could take place, but one thing you stated above was how you realized how many blessings you really have in your life! I cannot agree with that more. My family, boyfriend, close friends all have come together to just stand under me and keep me standing while there are so many unknowns. I am praying so hard that this is just a scare, but I know that if it is something I have, my faith in Jesus and my family and friends will be there to walk right along side of me and keep me going. Thank you for sharing your encouraging and optimistic story! It gave me a lot of hope!!
In Christ,
Sarah
Sarah, thinking of you. Wondering what your diagnosis was. Please let me know.
Hello, Debbie. I stumbled across your blog when searching for “my husband has hodgkins lymphoma”. My husband was just diagnosed March 11th with this cancer. So much has happened all at once. At first, we were just in a state of shock, not knowing how to process it all and not even knowing how to react. My husband is 32, healthy, amazing and my besfriend. He first noticed a small lump, just like you, by his neck. We both just figured it was an infection of something since he just had a cold. After a week or two it started swelling so he decided to have it checked out. Within 4 hrs…we went from thinking antibiotics would clear it up to “you have cancer, need to see an oncologist, surgeon get a port put in and start chemo” Scared was an understatement to us. My DH has never even had an iv before. I have never asked why or how. I just want to get him better. He has been diagnosed with stage 2b. He started his first treament March 20th and will do them every other week for 3 months. Then onto a petscan after 3 weeks and hopefully he will be able to say he is cancer free and a survivor. My husband and I are both very spiritual and lean very much on God and our church family. I believe God is a healing God and will get us through this. We have two amazing kids, Gracie is 4 and Dylan is 1.
I am so glad to read your blog, it gives such hope. Thank you for sharing your story. God bless and take care.
Danae-Thanks for sharing. I hope your husband’s treatment is going well. Please keep us posted. I’m so happy I have shared my story-I know I went through Hodgkin’s for a reason and I think it is to encourage others and connect people. Each and every comment means so much to me and spurs me on to get out there and reach people.
Thank you for responding, Debbie. I am very happy to say my husband is now halfway done with chemo! He is doing very well and having little side effects. He is still able to work and live his “normal” life. He is so amazing to me and I know he is on his way to recovery!
Yay! Thanks for updating us. 🙂
Thanks for this blog, I can’t help but cry to know that I can get over this cancer. I am 16 weeks pregnant and will start my chemo next week. I just recently got married last year and we had our honeymoon baby. I thought the lump in my neck which I noticed a year ago was nothing to be worried about unit I felt pain in my chest. I know I should have done something right away. I just have to trust my oncologist that me and my baby will survive this. And most especially God for despite this pain I’m going through He has worked silently by giving me and my husband this baby I’m carrying. I am more determined to survive this illness. Thank you for being an inspiration.
Rona-I am thinking of you and I’m sure others are too. Please keep us posted. I’m sending you an email. Deb
Thank you so much for the inspiring and positive feedback! I just got done with abve pc regimen 4 months ago. I’m 22 years old and so happy to get back on track with my life! I definitely understand how everyone feels before each pet scan ! Ugh. Thank you again for your survival story and giving hope 🙂
thanks for your comment! I am so happy everyone is sharing, I think we can all encourage each other!
Hello there thank you so much for your story.
I have found a small pea sized hard lump on my neck right above my right side collarbone
I noticed it a few months ago and have been telling
myself it is nothing because it has not grown in size,
I still run and exercise a ton, I don’t have any other symptoms.
You said you did not have any other symptoms? Night sweats? Tired? Weight loss?
Did the pea size lump get bigger?
After reading your story I am going today, book an appointment and finally get
it looked at. I have had mono a couple of times once when I was a teenager and when I was in
my thirties.
I am scared to go in and even have them look at it but reading your story I feel I need to.
Thank you
Gratefully
Carrie
Just trying to figure out who to call? I only see my OBGYN regularly?
Should I call a regular practitioner?
Carrie, I think a regular practioner is fine. I just went to my OB because I had a new baby checkup. Please let me know how it goes. I hope I didn’t scare you but it is better to be safe! I did not have any symptoms other than the lump. It was hard to remember if I was more tired than usual because I had a brand new baby.
Hey, your story is very inspiring and I’m glad to hear your doing well. I too have been diagnosed with Hodgkin’s lymphoma stage 2a nodular sclerosis. I was wondering what your subtype was and if you had any scar tissue. I’ve done 11 chemo treatments I said no to radiation. I have one more treatment left, we’re in the middle of finishing that then doing some scans my last ct scan showed a bit of grey still left over and they don’t know as of yet if it’s just scar tissue or not..
Thank you so much for the inspiring story. I really could feel the love and affection you have to spread the word about cancer and helping people through though times.
I have been with my fiance for a little over a year now. We dated in high school but moved in different directions in our lives. Now 5 years down the road we have found our way back to one another. It’s been very amazing getting to know one another and sharing in experiences we have been through. David (My fiance) has actually had Lymphoma twice now. The first time he was 21 and then again at 23. Now he has just turned 25. Which it in of it’s self is nothing short of a miracle. When he was first diagnosed, the doctor told him if he had not got a check on the lump in his neck he wouldn’t make it to 25.
I, myself have not had to deal with cancer or been around many people with cancer. But my mother was very sick a few years ago, from stomach issues. She has been resuscitated twice now. But I’m happy to say she is much better. But other than that I have not been around much sickness. I knew coming into our relationship, David had been very sick and there was a possiblity that he could become sick again. But I didn’t care, we knew we loved each other and were going to take care of each other.
So he just went for a pet scan last week. His doctor called on Monday and said he has a mass in his neck. So he is scheduled for another biopsy on this following Monday. He also has Horner Syndrome, and can barely talk. Which the doctor said he would have to wait it out for at least a year. Because you can’t repair the vocal cords without first giving them a chance to heal themselves. On top of those things he has a hard time breathing. Which he has had a chest xray for and it didn’t show anything but a healthy set of lungs. Well other than the part of his lung that was removed when it collapsed in surgery. He had some type of bacterial infection that was apparently unheard of. But he is being very positive, just like you. But I am finding it hard to not be totally scared out of my mind. I keep praying and just trying to make it day by day. But this is very hard to deal with. We try talking a lot and just being open and honest about the whole situation.
I thank you for sharing your story and for being a light in a dark world. I greatly appreciate it. Helps me to see that I am not alone in this journey we are about to take. Nor is he alone in what he is going through.
Hi Debbie,
I had messaged a few months back. I am glad that i came across your story, which really gives me hope. I was diagnosed with Hodgkins lymphoma stage 2a in February 2013 just 4 weeks after giving birth to our first baby. It was a huge shock to me and my husband. I have now accepted it but still i have some days where i feel that i have been robbed of my time with my little girl and the thoughts about me not being there in her life scares me. I know i should think positive but i sometimes find it hard. I am on my 6th cgemo treatment now but i still got 6 more to go and then rads to follow. BUT now my drs think my heart isn’t strong enough to take chemo drugs and i don’t know what to think ! Surely it can’t get any worse now…i just wanted to say thanks for being there giving hope…
DIVYA
Hi Debbie, I’m 21 years old I was diagnosed with hodgkins lymphoma in September of 2012. I did 6 months of abvd with no radiation. I had a clear scan in the middle of those treatments. However, my cancer came back after I was done with abvd. So In the beginning I had it on my right side of my neck, the left side and mycchest. When it came back it was underneath my right clavical. Needless to say I was terrified. I was very optimistic the first 6months with abvd. I went to school and I graduated college in may. I had to do 2 rounds of ICE chemo and I just for out of the hospital from doing a stem cell transplant. I have radiation to do as well next month. I’ll have my first scan sometime in early December. I’m very scared and very young. I love my family and I have an amazing boyfriend as well as friends. I loved reading your story and I was saddened by a few others I read on here. I wish everyone well and I pray for everyone. This is such a scary thing especially when I relapsed so fast. If anyone out there has had a similar experience I would love to talk to u. Only good vibes please. Thank you:)
I had hodgkins when I was 18, I was also stage 2A, I am 25 now. I too was given a very optimistic outcome and have been lucky to not have a relapse but I seem to have developed every possible side effect that has been related to ABVD/radiation treatment. I have developed cardiomyopathy, thickening in my lungs, asthma, an autoimmune clotting condition and hypothyroidism. I have recently been told my heart will not be strong enough to carry a child. This is devastating news for me. I am only 25 and feel like a failure to my husband because I can’t carry our baby, we have to adopt or do surrogacy. Despite my plethora of problems that have come from my treatment i have managed to complete my masters and become a nurse practitioner. It’s nice to hear about how many people have conquered this disease and gives me some encouragement to not be so depressed about what I am going through. Thank you so much for your inspiring words.
Donna-Marie, Thanks for sharing. I am so sorry to hear about the side effects you have had. You sound like you have accomplished so much already and I know you will help so many being a nurse practitioner, especially since you have gone through your illness. I remember it helped me tremendously when I was first diagnosed to talk to my sister’s friend who had just gone through Hodgkin’s the year before. It was really scary when I was first diagnosed and needed someone to talk to that had been there.
oops, Donna-Marie, meat to say more- I bet your husband loves you so much and is just glad he has you healthy! I doubt he thinks you are a failure, you are very accomplished. I’m keeping you all in my thoughts about you and your husband’s decisions in starting a family. 🙂
Hi Debbie,
It inspires me to read about survivors. I actually sent you a personal email containing my condition. But for everyones sake maybe it will inspire them as well.Basically, Im on top of my game..I just completed my Masters degree in Australia under a scholarship program.I didnt have a single synptom nor any lump. But last yearI experienced a major inflamation at my back but diagnosis was osteomyelitis. Then I had a followup MRi and there it was I was diagnosed with stage 4 Lymphoma.
Its my first chemo last week and Im thankful for not experiencing a single side effect. None of my girlfriends here in Manila know my condition..like you I dont want the feeling of people sympathizing and thinking Im dying..I always say I am just sick but Im not dying.It also helped me to read The SECRET book its all about positive energy.
I am very fortunate to have a strong and loving family.I am grateful to find out that this year is the year of faith.My oncologist told me this story..He had a patient who underwent several biopsies because they couldnt tell what her mysterious condition was as she didnt feel any pain.Then when he saw the results it was a toss up between a benign tumor that would need surgery and affect her nervous system and that might make her immobile or it can be lymphoma and she can just be treated with chemo and no surgery would be needed.At that point my doc said I actually prayed she would just have lymphoma it doesnt mean its C its the lesser evil.
I definitely agree that there are certain opportunities that illness can bring that I think only those people who underwent the same thing would understand.
I know I will be cured and I just see the bright side of each day.Being able to relax, sleep whenever I want watch and read all the books I need.And I look forward to next year and being cancer free. Just like the famous UK tennis olayer Ross Hutchins.
Macy, I am so enjoying emailing with you privately, but am super happy you have shared publicly as well because you are such an inspiration to us all!
Thank you Debbie.Your constant response is something I always look forward to 😉 You likewise are an inspiration to all of us 🙂 I will get my diploma soon and it was really worth the trip
I am loving getting to know you via the blog and personally through email and I am so proud of you. You are such an inspiration!
Hi all, i would just like to say i was diagnosed with hodgkins lymphoma this past May, i started chemo in July and i had a fairly large lump in my neck but after my second round of chemo it shrunk alot and im thankful for that. Yes the chemotherapy has its effects im tired alot and my taste buds are altered i taste food differently for a few days after each chemo. My stomach also hurts but my oncologist prescribed me with prilosec otc. Also my stage is stage 3 but two doctors have assured me i will do fine, the doctor who performed my excisional biopsy along with my oncologist. Im doing 12 rounds of chemo now, i have done three rounds already and i just cant wait until its over.
Thank you so much for sharing. So happy you have found all of us here to cheer you on. Keep us posted we are here for you!
Hi Debbie,
Glad to have stumbled on your blog.
I’m 32 and have 3 girls- 5, 2 and 7 months.
I have been diagnosed with Hodgkinson Lymphoma 2B. I’ve just had my first ABVD Chemotherapy cycle last Thursday, with 3 more to go before the first check.
The road to diagnosis was nerve racking.
It’s been really, hard because I had 2 weeks to ween my 7 month old girl. It’s hard having this whilst having such small children, and you do worry even though everyone says “it’s the cancer you want to have” compared to some others out there. You sort of wander how and why it came about. Cancer is like that- it’s not like say, a cold that you catch. It’s sort of bad luck. That part sucks.
But you are right about trying to stay positive. I’ve been selective in who I’ve told because you sort of don’t want it to be some juicy “news” for people in your community. And you get sick of repeating the how and whys to others. People mean well, but dont get it sometimes.
My family and the friends I’ve told have been really great. Really supportive. My mum has been unbelievable and I thank God for her everyday. My husband has just been great especially with the girls and organizing my medication, driving me around and making sure Im taken care of. It’s been hard on him, and I feel for him a lot.
I was reminded today to keep my faith in God. This brings me a lot of peace and acceptance of the road ahead. Like you Debbie, I pray my cancer is cured. Completely healed. But that also it brings a lot of good for my husband, my daughters, my parents and sibling and for all my family and friends. I hope the silver lining radiates for them in so many good ways. That my road to recovery helps others, through Gods Grace. In some way. This is my wish.
Thank you for sharing your story and bing a positive voice of hope. Ezabelle
Ezabelle, thanks so much for sharing. Yes, I too, had to wean my son when he was only 8 weeks old, I had wanted to go at least 9 months but at least he got to keep his mom! He was a really sweet and easy baby and slept well so that helped so much. And my 4 year old I think knew what was going on too and was so good. I am glad they were so young so they don’t remember too much, but treatment really wasn’t that bad for me. I just was sleeping a lot the day of and after chemo.
I kept telling myself that God had a plan for me. I try not to get overly religious on my site because i want to welcome everyone, but I do have a strong faith in God and I felt his presence with me so strongly throughout my treatment.
I hope that everyone that has to go through this has some kind of support system, their faith, family, friends. And if they don’t I hope they know they have me and others on this blog post to cheer them on and be there for them.
Hi. My sons Hodgkin’s Lymphoma presented just like yours…he is healthy for goodness sake! We found out his diagnosis yesterday. I’m devasted for him. He is 23 years old. My heart, as a mother, is breaking.
I’m glad I found your blog. It has given me some positivity this morning.
Hi – Thank you for sharing your story — how wonderful! My daughter Rebecca (15 yrs. old) was diagnosed with stage IIa in January 2013 — had 3 months of chemo with no radiation. She had her first 3-month check-up on 08/16/2013 and all looked well. She’ll have a CT scan in November and although I know that we have every reason to believe that sje is cured — I still worry. Like you, she had the best of attitudes while going through treatment and she is convinced that she is completely cured — and most days I do too — it’s just when I allow fear to creep in that I doubt. It was so helpful reading your success story — thanks again!
I stumbled across your site by accident. I had looked up information on the internet before only to be scared by what I read. So I decided I wouldn’t use the computer for information and only ask my doctor and get the answers from him. But I decided to type in Cancer survival stories one night and up popped your information. I just kept reading and reading and couldn’t stop until I had read every single entry. I felt so relieved and it made me feel so much more positive.
My son was diagnosed with stage 4a Hodgkin’s Lymphoma in Feb. He had no symptoms but a lump on his neck. He had been sick over 12months ago prior and lost a little weight but got over it and continued his full time apprenticeship working 10hrs days and working out at the gym. He was doing lots of exercise trying to put on weight but never could. But my husband and I were the same at that age so I wasn’t concerned. He went to schoolies with his twin sister and had a ball coming home with a bit of a cough that he couldn’t shake off. He went to the doctor twice and got antibiotics and it finally went away. Again we weren’t worried for his twin sister had similar condition. We went on a family holiday to Thailand and when we returned he pointed out that he had a lump on his neck. Our local GP sent him for a CT scan immediately. They weren’t sure they said it could be cat scratch disease, glandular fever, TB or Lymphoma. Because we went to Thailand they were thinking TB. He then had a blood test and a needle biopsy all showing up nothing for certain. He then went in for a larger biopsy and finally two weeks later the results were given to us. Shock, Disbelief, Why.
A PET scan showed some small spots in the lungs and spots in the neck, so stage 4a. I freaked out. Was the first time he was sick the sign all was not well and we should of done more than, I guess we will never know but it still haunts me to this day.
So I went crazy researching and changing our food, cleaning and personal products. Big change for all of us.
He has just finished 6months of chemo and coped so well with it. He didn’t lose his hair it just thinned out a little. So to anyone that met him they would never know he was sick. We have just had another PET scan. The spots in the lungs are gone but there is still a small area in the neck so we have an appointment on Wednesday to see another specialist and probably get radiation. I was so hoping that it would be all gone, and it is disappointing but after reading all that everyone has written and understanding that this is normal and just another part of the treatment that he will need to get rid of this disease forever. Thankyou we all need more helpful encouraging information like what you have on your site
I enjoyed your story and the positive outlook! My sister just turned 30 and found out 3 days ago that they are sure she has lymphoma. She will find out for sure what kind Thursday. It feels like its forever away! Our great grandmother died in 86 of leukemia, so I’m praying its not in her bone marrow or anywhere else. She has the swollen lymph nodes in her collar bone area (both sides) and in her chest. She has been getting symptoms. I don’t know what her treatments will be, but she has 4 little ones, so I hope to travel to her state and help her as long as I can. Anyway, thanks for sharing! I think it give people a positive outlook when they hear they aren’t alone.
I’m 24 years old and was diagnosed with Hodgkin’s Lymphoma when I was 21. I’ve been in remission for over 3 years now and the whole experience opened my eyes to how much love is truly around me. I loved reading your story and I feel that I can relate on many levels. I agree that optimism is the way to go! Thank you so much for sharing this.
-Oz
Hi! I stumbled across your website looking for people with different symptoms. My husband is 33 years old and was diagnosed 11-25-2013 with Hodgkin’s lymphoma. We don’t know what stage yet and he goes in next week for a pet scan. This all came as as uprise but he did have symptoms, he just hid and ignored them. It started with a lump on the right side of his neck. He has fevers, night sweats, itching and weight loss. We have been seeing a GREAT oncologists who is very optimistic so that helps. He has no insurance so that was one of the reasons why he waited so long to say anything about his symptoms. When I noticed the weight loss he said he was preparing for our cruise to Jamaica, so I thought nothing of it. Exactly one week before we were scheduled to sail, he was rushed to the ER from the pain under his arm. After that visit they referred us to the oncologist who we see now. He told us this cancer is highly curable and after the pet scan and a couple other exams he wants to start chemo. The advb? I know god makes no mistakes and everything happens for a reason so when thus is all over he will have a story to tell. I’m do glad I came across the website because reading things online can be very discouraging, but this is a positive forum.
I was wondering if anyone here had any symptoms and if so how did they deal with them, especially the night sweats and itching?
Through it all I’ve remained positive and though my husband has some bad days emotionally, I have faith that we will beat this! Thanks for letting me vent 🙂
Hi! I stumbled across your website looking for people with different symptoms. My husband is 33 years old and was diagnosed 11-25-2013 with Hodgkin’s lymphoma. We don’t know what stage yet and he goes in next week for a pet scan. This all came as as uprise but he did have symptoms, he just hid and ignored them. It started with a lump on the right side of his neck. He has fevers, night sweats, itching and weight loss. We have been seeing a GREAT oncologists who is very optimistic so that helps. He has no insurance so that was one of the reasons why he waited so long to say anything about his symptoms. When I noticed the weight loss he said he was preparing for our cruise to Jamaica, so I thought nothing of it. Exactly one week before we were scheduled to sail, he was rushed to the ER from the pain under his arm. After that visit they referred us to the oncologist who we see now. He told us this cancer is highly curable and after the pet scan and a couple other exams he wants to start chemo. The advb? I know god makes no mistakes and everything happens for a reason so when thus is all over he will have a story to tell. I’m do glad I came across the website because reading things online can be very discouraging, but this is a positive forum.
I was wondering if anyone here had any symptoms and if so how did they deal with them, especially the night sweats and itching?
Through it all I’ve remained positive and though my husband has some bad days emotionally, I have faith that we will beat this! Thanks for letting me vent
It is refreshing to read survivor stories. I am in Tulsa too!
I was diagnosed with Hodgkins 2b nodular sclerosing type on 12/26/13. I had 6 cycles of ABVD and had a clean ct scan. I refused the recommended radiation therapy and was told I was in remission.
4 months later, I had my routine follow up ct and it showed some new enlarged nodes – that hadn’t been involved before. The PET scan showed hyper metabolic activity – RELAPSE! As I sit here writing, I am getting ICE chemotherapy, and will be going to Dr Selby at OU for bone marrow transplant.
I’m just curious if any of your readers have had experience with ICE or transplant.
Hi Debbie
Thank you so much for posting this. My younger brother (20) has just been diagnosed with this and I’ve found your article very helpful.
Thanks for your comment, I am so happy that I can help others with my experience. I love how everyone has written in and inspired each other. Keep us posted on your brother! 🙂
Hi Debbie, where you diagnosed/staged with a ct scan?
Donyou still have regular scans or any other follow up?
Hi debbie..
I m also diagnoised with hodgkins..
Nd i m facing it strongly nd positively with my family’s support nd blessing..
Bt wht depresses me is hair fall..!
I m 23 year old nd just got engaged..
My fiancee is very supporting but my hairfall,
Upsets me..
I lost my Dad from Non Hodgkins Lymphoma in 2006 and now my brother going through Cancer Non Hodgkins Lyphoma..He first was got cancer in 2011 went through Cheom and Radiation and was in remission until now 2014 relapse again..this time high dosage of chemo and then Stem cell transplant..I try and stay strong for him even though watching him go through this is painful..I reasearch every inside and outs about Cancer now..I hope my brother beats this again.:(((((
My sister was just diagnosed with Hodgkin’s Lymphoma. She’s 25 years old. My family is really worried but I’m going to show them this blog. It really helped me feel better. Thank you so much.
Hi Debbie!!! I just wanted to check in and say that it is now 6 years that I am cancer
Free!! I go for my last ct chest scan in October and then just every year to see
My cancer doctor. My thoughts and prayers go out to everyone on here.To anyone
Who is reading this you can get through this!!! Be good to your self,do what your doctor
Tells you,be around positive people only,prayer and family really help
Thankyou for this, it is so helpful. I am at the end of treatment for non-hodgkins and am awaiting a pet scan. Really hoping I have scar tissue and nothing active. This has cheered me up, and now I can see whatever happens, I can cope. Best wishes to you
Carolyn, thanks for your comment and I hope you are doing well!
My beautiful 30 yr son retired from professional sport, representing at the Olympics and a year later had a 14 cm tumour in his chest diagnosed as Hodgkin’s lymphoma. He had three biopsies to get a diagnosis and eventually stated 6 months of chemo every second week. His pet scan recently came back showing no live cancer cells left and we are thrilled, but still nervous about the month long radiation he had got to have. The tumour has shrunk down to a small dead core and can’t be removed surgically because of its position.
The amazing strength and positive attitude he showed as an olympic althlete has helped in his fight against this awful cancer. He also has been surrounded by friends and family who have been wonderful in their understanding and support. He keeps us all calm.
I’m hoping he gets through the radiation ( can anyone tell us what to expect with this) and can get on with his life cancer free. He has used his positive outlook the whole time and his attitude has always been – ” lets get on with ………He’s planning an end of cancer party to thank all his supporters and I’m trying to breath again .
Thank you all for your wonderful stories. I only hope our story can finish with a total remission and my son can marry his lovely supportive girlfriend and start a family.
Thanks for your comment and I hope your son is doing great! I think a positive attitude makes a huge difference in healing.
Hi, I am 17 years old and have just been diagnosed with Hodgkins. I am so scared. I have never had to go to the hospital until now. I get my port on Monday and start chemo on Tuesday I think. It started out as chest pain but we thought it was because I had a cold and it was just congestion but no it was cancer. I would have never guessed. I am so scared. Everyone has already been so supportive. I was really upset about my hair i don’t want to lose my hair. And it’s my senior year of high school I feel like I’m going to miss a lot.
Hey, I’m 19 and currently going through the same thing, would really love someone similar age who’s going through it to talk to. If you want you can email me: ievr@hotmail.co.uk. Hope you’re doing ok x
Thanks for your comment India, and I hope someone answers you that is around your age. It really helped me to talk to someone that had just gone through it. Hope you are doing well.
How are you doing Emily? Sometimes I wore a wig, and people couldn’t tell. Sometimes I didn’t care and just wore a turban. I hope that you are able to stay active and involved at school. I was able to, I still worked out and everything, I just slept a lot the day of chemo and after.
Hi Debbie!!! Just checking in! I had my last scan March 2015 and am now 7 years cancer freeI am now going thru early menopause at (44yrs old) with a lot of symptoms!! I hope you and everyone on this site are doing great!!
Wow. I couldn’t have read this article at a better time. I am in the process of testing still, but it looks like it will be Hodgkin’s Lymphoma. I was, of course, surprised and scared when my primary doctor thought it could be Hodgkin’s a month ago. I immediately thought of my boys. I am 54 and have had 4 boys. My oldest passed away 25 years ago, and my others range from 14-24. As many of us can say, I have had several hardships in life, but the wonderful times far outweigh the hardships. I know I will be fine, and I will do what needs to be done to get there. That’s not saying I’m looking forward to it, but it’s a necessity. I smiled when I read the part where your faith became stronger. I had just txted that same message to my husband. We have been separated for over 6 years, but we are friends. He has been very supportive and has been there at all the doctor’s appointments to dater. We have a history… I txted that I have always had my faith, and I don’t believe I am being punished. I know that my faith will just become stronger as it did when my son had passed away. I’m not a “holy roly,” but faith, family and friends are what have always helped me through the worst. I don’t mean to babble. I wish you all the best.
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My husband is 37 years old and fight cancer hugkin lymphoma for 3yers now he hade chemo radiation bone marrow transplant and the doctor said he have nothing to offer any more I’m so scarred we going to ny for a clinical trail
Rivka, How is your husband doing? Is he doing the clinical trial? Keep us posted.